Our Mission
The American Beckwith-Wiedemann Spectrum Family Foundation is dedicated to supporting individuals and families affected by Beckwith-Wiedemann Spectrum.
We strive to be a trusted source of accurate, accessible information for both newly diagnosed and long-term patients. Through education, advocacy, community-building, and sharing updates on medical research and foundation initiatives, we aim to empower families and improve lives.
Our mission is rooted in compassion, connection, and the belief that no one should face this diagnosis alone.
Our Vision
We envision a world where every person affected by Beckwith-Weidemann Spectrum feels informed, supported, and connected.
Our goal is to build a strong, inclusive community that raises awareness, amplifies patient voices, and ensures every family has access to the knowledge and resources they need.
As we grow, we aspire to host national conferences, expand outreach, and become a central hub for support and education across the BWS community.
Christopher with his dog, Winston.
Our Story
The American Beckwith-Wiedemann Spectrum Family Foundation was founded by Christopher Eskew, an individual living with Beckwith-Wiedemann Spectrum. His personal journey with BWSp has given him a deep understanding of the challenges, both medical and emotional, that individuals and families face following this diagnosis.
After navigating these difficulties firsthand, Christopher recognized the need for reliable information, compassionate support, and a sense of community for those affected by this rare condition. His vision was simple: to create a space where families could turn for guidance, encouragement, and connection.
Christopher with his mom, Dee. (1985)
What began as one person’s mission to make a difference has grown into a foundation dedicated to empowering others through education, advocacy, and shared experience.
ABWSp Foundation exists today because of Christopher’s courage to turn personal struggle into purpose, and his commitment to ensuring that no one facing BWS has to walk the path alone.
Christopher at BWSp event.